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Salamander
Fire Walking

To prove I'm not totally negative...
Wed May 14 2008

Things improve by increments. Beginning next week my PUVA treatments are reduced from three to two a week. I’m currently at 6.28 joules; they’ll continue to step that up until I reach 8 joules per treatment. My CTCL lesions, which had mostly disappeared while I was on IV steroids in February, have never recurred.

I got a call from Liver Transplant this morning. They are stepping the steroids back from 15 mg per day to 10 mg. (This warrants a “yippee”; I loathe what those stinking things do to me, from having to shave areas of my body that no woman should ever have to shave to the mood swings that have me ready to crush small cats and Professors at times). They are taking me off of the tacrolimus completely (one of the three immunosuppression drugs I’m on in addition to the steroids). I may actually be able to get my daily pills into my pill case without having to carefully arrange them as if they were some arcane type of 3-D IQ puzzle.

Finally, it's been a while since I've posted a picture of any of the kittles. This was taken Saturday morning, when the tulips were still intact and the sun hadn't yet been washed out of the sky. I played at PhotoShopping it into a black and white print, which doesn't look too bad, but still doesn't compete with the color version.


5 Comments
  • From:
    404Error (Legacy)
    On:
    Thu May 15 2008
    Wow! It sounds like things are going well. I'm glad to hear it.

    (And I totally get the pill dispenser Tetris thing.)
  • From:
    KiwiKimi (Legacy)
    On:
    Thu May 15 2008
    Wonderful to hear that things are going somewhat better for you.

    M-i-l has been on very large doses of steroids that have fairly recently been reduced, and the improvement has been remarkable. They're live-savers, but at a heavy cost.

    Beautiful cat and beautiful tulip.
  • From:
    KiwiKimi (Legacy)
    On:
    Thu May 15 2008
    And of course that should have been "life", not "live". Obviously livers (which I just typed as "lovers") are on my mind.

    Life depends on the liver, as the old saying goes.
  • From:
    CatControlled (Legacy)
    On:
    Thu May 15 2008
    Yay - that's good news! And a nice photo, too. If our Cat was that calm, though, I would be worried that she was dreaming about her next plot to take over the planet. :-)
  • From:
    SitsWithAnAddingMachine (Legacy)
    On:
    Thu May 15 2008
    She has such a beautiful coat. What a peaceful, pretty picture. Good thing the dog who's competing for lap space with my computer isn't there, or it wouldn't be so peaceful!

    Glad to hear you're getting less medicated.