Salamander
Fire Walking

Deflating and Waiting
Mon Apr 07 2003

What a day. Three inches of snow, give or take, made an unseasonable and quite unwelcome appearance today. You don't have to go more than ten or so minutes north of us to find areas afflicted with six inches, so I guess I shouldn't complain too much. Why must it always snow on days I have to make my hospital run though?

All of this leads up to the fact that I had yet another paracentesis today. I was scheduled for 9:00, and actually got to the hospital much earlier because I anticipated traffic problems that I didn't encounter. They have usually been able to take me early if I arrived early, but today Dr. Liver had several emergencies, and I didn't get taken until nearly 10:00. Even after I was prepped I had to wait for the good doctor's ministrations, and the paracentesis didn't start until after 10:30. I didn't leave the hospital until well after noon.

We got 4.9 Liters off, which is about all I had in me. This is as deflated as I've been since this whole nonsense started last summer. The elastic-waist pants I wore to the hospital now sit loosely on my hips, the elastic not stretched out in the least. The edema in my legs is completely gone; I have ankles and kneecaps again. I'm looking forward to getting some real sleep under my belt so I can enjoy feeling normal.

Dr. Liver is keeping me on the new diuretic, but we're cutting it back to every other day. That should help control the nausea. I'm keeping my fingers crossed that the lower dosage will be sufficient to maintain the improvement I've achieved in water loss.

Dr. Liver also prescribed some sleeping pills for me. Ordinarily I'd be less than thrilled at the prospect of relying on those, but right now I just don't care. I don't think I've gotten more than three hours sleep any night for the past week, and those three hours are never even consecutive. I shall go stark raving mad if I don't get some real REM time in soon. I called my friend at the vet school to back out of giving the seminar tomorrow; in my present condition there is simply no way I could do it and be coherent. I'll call work tonight and leave a message that I won't be in for the afternoon as originally planned. Tonight I take my sleeping pill, and tomorrow I sleep until I wake up. With any luck, a good night's sleep coupled with having so little fluid left in my abdomen should have me feeling pretty good by Wednesday.


Ah, but the best news - I plugged today's blood test results into the MELD calculator and got a 19! If that is confirmed later this week, then all of this has achieved its goal. I find I'm thrilled and scared shitless at the same time. The reality of actually getting a transplant begins to really hit home.

12 Comments
  • From:
    TexanElf (Legacy)
    On:
    Sun Apr 06 2003
    Shay said to tell you last night was wet and wild here. ;o)
  • From:
    TexanElf (Legacy)
    On:
    Sun Apr 06 2003
    We had rain and a hailstorm, of course!
  • From:
    Allimom (Legacy)
    On:
    Mon Apr 07 2003
    I have several private entries also. Some things should be private, and occasionally hinted at.
    Alli
  • From:
    TraumaMama (Legacy)
    On:
    Mon Apr 07 2003
    I don't even make those entries private---I have a fear of private entries becoming public, so I don't make any private entries.
    But yea, last night was pretty interesting in our house too with no kids around. ;)
  • From:
    MoonriddenGirl (Legacy)
    On:
    Mon Apr 07 2003
    <blink> Wow. All you people having interesting nights. Mine was the Evening News, an article out of EW and bed. Sleep. Hardly worth mentioning. :)
  • From:
    Shay4l (Legacy)
    On:
    Tue Apr 08 2003
    "Hey Nineteen
    That's 'Retha Franklin
    She don't remember
    The Queen of Soul
    It's hard times befallen
    The sole survivors
    She thinks I'm crazy
    But I'm just growing old"

    (Steely Dan)

    I prefer snow to hail....
  • From:
    Allimom (Legacy)
    On:
    Tue Apr 08 2003
    May you get the phone call soon, and everything go smoothly and quickly.
    Alli
  • From:
    Toxicepiphany (Legacy)
    On:
    Tue Apr 08 2003
    Good luck. I hope you get the transplant, and a good one soon. I know it seems scary, and I bet it would be...but think about how much better you'll feel when everything works right. Everything will work out for the best, I have faith.
  • From:
    Lilith (Legacy)
    On:
    Tue Apr 08 2003
    That grin takes on a whole new meaning.
  • From:
    Coolkids (Legacy)
    On:
    Tue Apr 08 2003
    19, wow !
    I'm not even sure what to say now.

    It's getting close now .
    Stay well, but not too well that it puts you back to 18.

    ck
  • From:
    Greensparkles (Legacy)
    On:
    Tue Apr 08 2003
    It's good to hear you're feeling well and grinning!

    ; )
  • From:
    MoonriddenGirl (Legacy)
    On:
    Wed Apr 09 2003
    I'll keep my fingers crossed for your sleeping, especially. Sleep deprivation is sheer torture. :/ {{you}}