My day has started a little later this morning. Debbie did not get here until 8:39 AM. Jackie doesn’t need her to come early anymore, and it really should not matter. I should be telling her and Debbie when to be here to be very honest. This morning, once again,I want to fire Jackie because of her shit control of my life again. She has kind of pissed me off again! I am glad don’t see her until tomorrow, and to be honest with you, I really don’t want the Tupperware party. I’m doing it because Jackie has had her party last year at our building. It’s a waste of my time and money to be honest. I could careless if I had Tupperware stuff in my home even if it good stuff, and I do like Tupperware a lot. I used to sell it but stopped.
Dialysis Update
With the holiday season over now, my dialysis days are back to Mondays,Wednesdays, and Fridays. I am glad for my schedule, and now, I need to perfect my routine once again. It needs some work. I, no longer need to use my Hoyer at home, so that has been put away. We have it just in case the girls are here and I have fallen on the floor in my apartment. My goal is NOT TO FALL, though. I have been doing great NOT falling, though.
I have had dialysis for almost 6 years this year. From April 2019-April 2024 will mark 6 years since I started dialysis after 31 yers of great kidney function and my kidney got hit with a kidney disease. 31 years is a record in my life and it was my mom’s kidney! Dr. Anjum never had a transplanted kidney last that long in his years of being a doctor yet. I took good care of my kidney to my dad’s and his wife’s Sandy’s surprise. They did not even think I would have not taken care of it as well as I have taken care of it. In fact, I am not successful like my younger sister and older brother, and they think I don’t want to do anything, but lay around and be lazy, and that is not true. They think that my handicap has worsened because I didn’t do any exercises when Covid hit me in 2022 along with a hematoma stopped my legs from moving my legs, and I got a blood infection from the dialysis catheter. I was in the hospital twice last year and in two nursing homes. It’s not that I did not want therapy, it was very difficult to meet the demands of the therapists in both nursing homes, and the nurses there were rarely there because people don’t want to work in nursing homes anymore. Nursing homes are hurting and the generation after mine don’t really want to work. It’s ridiculous and stupid. No one wants to work in nursing homes. I was in two nursing homes with workers that are few. Patients are a lot and workers are less. At St. Elizabeth’s Nursing Home, on the weekends is one nurse for 50 residents at times because the younger generation don’t want to work or quit. It’s horrible. When I was at St. Elizabeth’s Nursing Home the first night, it took a nurse three hours to get me from the other end of the building because I accidentally pulled out the call button because that night. I needed something. I had a poopy diaper on me! Jackie thought that was unacceptable because I should not have waited 3 hours for a nurse, and when she found out that Melissa was the ONLY nurse on shift, she was even more pissed off. On November 14, even though AMA, I left St. Elizabeth’s Nursing Home and have been in the hospital one in 2023 because of a UTI infection went too far but was not corrected properly until a week after being admitted. Dr. Anjum was NOT very happy about that. Dr. Anjum had looked at my test results and saw they, the ER, DIDN’T give me antibiotics. He gave me Ciprofloxacin to correct my UTI. UGH! I get it. Now, when I get the feeling of an UTI, I have to get catches at the ER because my kidney no longer produces enough urine to pee in a cup, and those procedures can take a little longer trying to straight cath me. Ugh! I has to be done at the ER. It does suck at times, too, because it’s kind of, IS uncomfortable for me because of my hips and having CP.
With dialysis treatment over shortly, I will be getting off, get in my power chair, get weighed out and back in my power chair, and head downstairs to wait for my ride home between 2:45-3:00 PM, get something to eat, and into bed for the night after changing my clothes and running o the bathroom if I need to again. I will get my evening snacks, turn tv on, and watch my Roku Live channels because here, at the clinic I watch the Disney channel on their cable. Cable channels here are quite a few and it is 44.1 channel here. Bluey is on right now, lol. I love that cartoon, actually. I rarely watch cable shows anymore. I watch Roku Live at home now. Although I have 45 minutes left to dialyze, I need to patient to have my technician Christina take me off and that is another five to ten minute to take me off for the day. I am usually tired and ready for bed by the I get home these day. Can’t lay in bed all day tomorrow because I have a Tupperware party to go to despite my feelings about going right now is no way. No more parties after tomorrow but will be going to parties my neighbors have if they do after mine. Going to rest now. More later…
I have 37 minutes left to dialyze.