Ksmiley/LittleKrissi
My Life in Words

My Morning Thoughts
Wed Aug 28 2024

Morning Thoughts

With sleep not easy to be be found last night, I got at least 5 hours of rest between 1 AM to 6 AM and I still feel tired and yawning a bit more than my usual yawn count. I woke up around 7 AM to read James Patterson. I am reading a book that has three short stories in it. ‘Three Days to Live’ ‘Mothers & Children First’ and ‘The Housekeepers’ I have read ‘Three Days to Live’ and now reading ‘Women & Children First’. I am moving along and forward with my reading regimen on daily or regular schedule with my library 📚. I have ALWAYS LOVED to read since I was a little girl being read to.

 

 

Still Recovering from Yesterday’s Major Meltdown I Had All Day

Yesterday was definitely a very bad day for me. Having numerous meltdowns yesterday did NOT make my day and night the best. I was in a foul mood ALL day, and I felt that I was NOT understood by my caregiver. I am troubled with change of my schedule and Jackie doesn’t talk to me about the changes she makes. I feel I am the last person to know anything about last minute changes, and it is Deb telling me, NOT Jackie. I employed both Jackie and Deb, and it has been frustrating me when Jackie doesn’t talk to me first and I hear it from Deb. I do not like it.

I also got upset with Jackie telling me I get upset about the littlest and stupidest stuff, and I DO NOT do that. I get upset often with Jackie NOT talking to me first for a long while. I WANT JACKIE TO TELL ME, NOT DEB! I do not care if Jackie has an appointment somewhere. She can send me a DAMN text! How she makes me feel happens every week and once every week, I want to fire her! I’m not getting upset over stupid stuff. Thanks for making me feel real STUPID, Jackie! Dang it!

A tenant/friend from the apartment building had said that I was yelling in the lobby when Jackie got here. When I learned who said something to Jackie, I got real pissed off and now do not want to see this tenant/friend for a while. Yes, I was yelling in the lobby, but it was because it is hard for me to talk when I am crying with tears in my 👀 and tears streaming down my face because my caregiver is yelling at me over the phone! Damn people sometimes do not understand me.  

Honesty is the Best, Right? Yes!

Ok, I have been in a funk since Friday because Kay the social worker at the dialysis center told me what she read in my chart at Froedert the day before. Her saying that I may not be chosen for a kidney because I cannot walk. Also, I told Kay I was not happy with those who told Froedert about my meltdowns, and that they write notes saying I had a meltdown.

So, since Friday, I have wanted to get underfoot of Mercy’s Dialysis Clinic. I will deal with Mercy Options and physical therapy when the time comes, otherwise MercyHealth will be out of my life and no longer getting business from me. I will see about going to Fresenius quietly if I can. The shit that MercyHealth pulled in 2022 with me has been unacceptable from the beginning. I I was 52 at the time and they thought I needed 24-hour care and my doctor Dr. Jennifer Hussli has been my former doctor since November 2022 and I have blocked her and her family on Facebook because of how she was NOT returning phone calls to my mother or my caregiver Jackie regarding me. She also DID NOT call me back for several days, either. My mother was NOT impressed, so she and my caregivers got me out AMA at the nursing home back to my 🏡 to be with Magic and got the nursing home to get me ready for going home, and I dropped Dr. Hussli as my doctor and I will NOT refer anyone new Dr. Hussli’s anymore.

Not Looking Forward to Going to Dialysis Today

I am NOT looking forward to dialysis this morning. My ride has picked me up and I barely get to the clinic, and I am going to weigh in and get to my chair. At least my ride got me to me at the clinic by 11:15 AM.


4 Comments
  • From:
    D'vorahDavida
    On:
    Wed Aug 28 2024
    So sorry to hear you are having a hard time right now. It DOES seem that things in life sort of pile up. We can maybe take one or two things going awry, but if too many things do, it's hard to cope.
    • From:
      Ksmiley/LittleKrissi
      On:
      Thu Aug 29 2024
      I am learning how to cope through counseling. When I feel that someone doesn’t understand me, I have to write my feeling out, D’vorahDavida Dialysis Update I visited with Dr. Anjum when he made his rounds through the clinic. When he got to me, I asked him what the side affects of low hemoglobin is, and after he told me what they were, I was sure not having symptoms, and Penny the nurse said that I did not have any symptoms and hemoglobin level was 12.8 where it should be—normal. When this happened last Wednesday, I had a few minutes of anxiety waiting for the test results to come through, and when I did see the results were in the normal range, I was able to breathe normal again. Today, for some reason that cannot be explained, I was happy to get out of the clinic. I am not fond of tension being high anywhere. It is crippling and it feels like a vise tightening on your head to support it from further injury. I did nor say hello to many techs today. I just watched techs and nurses do what they do best. I did not pay attention to the conversations around me. I kept to myself, my space was mind and those allowed without any qualms from them. I just watched a tv program of couples, friends, and families search for a vacation home with a certain. That half hour show was watched from 11:30 AM to 2:20 PM. Upon my arrival, I was glad to get out of the clinic. Although it is important to go, I wish I did not have to go to Mercy anymore. My plans to leave are necessary. I no longer trust MercyHealth in many ways even though Dr. ANJUM has done nothing wrong, I need to leave Mercy for good and go to SSM Health. I want to go to Fresenius in Creston Park Mall in Janesville, Wisconsin. The Rest of My Day With dialysis done, I weighed out at 94.??, I rolled out of the clinic and said goodbye to the husbands who were waiting for their wives having treatment and the receptionist Kathy while I passed through the lobby to head downstairs to wait for my ride home. It was John who picked me up at 2:49 PM. I went for a short ride while my ride picked up another patient to take home, then I was the first to be dropped off at home, I do not mind riding around a bit. I was glad to get out of the clinic when I did because I was uncomfortable there today. My rides are brief most of the time anyway. Deb and I made a lunch, and I ate at my kitchen table, walked to the bathroom to use the 🚽—please excuse my use of emojis and stickers—then my underwear was changed, and I went to my bedroom for the rest of the afternoon and evening. I wanted to watch some tv, read, and relax with the cats not too far away. Millie loves to sleep in the hammock while Magic lays and sleeps on the bed with me. He loves to cuddle and snuggle with me. My babies (cats) have different personalities. If want to know more about them, I have a diary called Magic & Millie Kitties. They have their own journal now. I think I am going to change the title soon. It does not sound like a good title right now. Thinking of a title to change the one I have for the kiddo cats now. The rest of my day was spent watching TV and relaxing on the bed. No plans until tomorrow. I have a med check with Joeylynn, my med prescriber and therapist. I see Deb J as my counselor at Mercy Options. Time to Be Honest I am fed up with MercyHealth all around except for Mercy Options. I have been told that no lawyer will touch a case with MercyHealth. I do not understand this. Seriously? What MercyHealth gets away with is absolutely ridiculous and insane! When the opportunity comes to leave MercyHealth Dialysis Center, I will do so without looking back. I will leave Mercy Dialysis Center and go to Fresenius the moment I have the chance. I will talk to my nurse M as soon as I can. At this time, I have had it with MercyHealth except for Mercy Options where I go to have counseling with Deb J, and see a med prescriber Joeylynn. Also, since SSM Health does not have certain things for physical therapy and a pool, Jackie is talking to Dr. C Taylor about getting PT at Mercy East. I feel the MercyHealth has failed me big time at the dialysis center. Who would put notes in my chart saying that I have had a breakdown. What, I have a difficult day occasionally, and what happened on Friday should not have happened. Kay should have not said a word to me about what Froedert wrote in their notes on Thursday. I was told by Kay saying that I may not be a candidate for another transplant because I cannot walk, and first, Froedert has not discuss my case yet, and second, they did not say what Kay said to me on Friday. Some people need to keep their mouths shut in front of me So, today, while at the center getting dialyzed, I did not feel incredibly happy, and I do not want to continue to have care at Mercy. Mercy has created a trust issue with me since 2022. I will be writing a complaint soon. It is not the right time, MercyHealth is the cause of great anxiety, and I will be leaving MercyHealth soon. It is frustrating and at the time of tears running down my cheeks. My mom gets me and she has been in New Mexico from 1982-1993 and 1999-present. I have gone to see her and her husband off and on during the years of 1999-2010 and she and her husband visiting here. My grandpa, mom’s Dad was down there because mom moved him down there until his death in 2003. My mom hasn’t been up here in 14 years, so i feel I am going through abandonment issues with her as a child when I am a 54 year old adult. I have been able to use my little girl voice ever since I was a child. People tell me I should do voice overs. Sometimes I wonder if I will get emotionally better or worse. Definitely not worse, of course, because anxiety and panic disorder sucks.
      • From:
        D'vorahDavida
        On:
        Thu Aug 29 2024
        I am happy for you that you can get all these thoughts OUT. It's so helpful to write them down, even though the issues still exist, they aren't bottled up with no voice. I hope you can get things squared away soon with your healthcare.
        • From:
          Ksmiley/LittleKrissi
          On:
          Thu Aug 29 2024
          Thank you! I will continue with writing. I believe God gave me some gifts, but I am not going to go hog wild with my ability to speak well in writing because I am still learning how to write well and remember what I learned in my 13 years of schooling. I am a stickler with grammar and using the right word in context. My counselor DJ said I should keep writing my feelings out because I am real good at it. Sometimes, however, I still catch a grammatical error after I have printed and shared my thoughts with someone. It is annoying I do not get it before I printed it, but I’m human, too.