My Caregiver Jackie does not seem to fully understand that I am not jealous of her being able to go wherever she wants when I am stuck in bed for hours. I have not accepted the fact of my CP changing as much as it has. I am walking better and getting around with a walker from and to my power chair better now, but it has been a slow process. Not being able to get out of bed myself does not help make me feel so good. Not being able to get out of bed by myself does not please me right now. With help from a caregiver, I can get up and off my bed under 5 minutes now, but not when I do it myself, yet. It is a little frustrating for me to this day.
I am used to being get to where I want to go by myself to this day, and not being able to do something for myself does make me feel yucky inside. I am stuck in bed for a while until my caregiver gets there.
What also frustrates me is Jackie not telling me herself that she is not going to come. I always here it from Deb. Jackie makes me mad when I hear from Deb that she will be at my place to let me in today because Jackie is still sick. It irritates me and she does nothing to remedy the problem. I hate it to the point I am mad at her about it. What she does irritates me more than helping me. Her taking control needs to STOP, she said I am getting bent out of shape over something stupid.