I do have to admit that I am somewhat not happy with the dialysis clinic today because my technician did not get me on the machine until 11:48 am this morning. Apparently my time getting on is at 12 noon and not at 11:45 am as it states on Mercy’s MyChart. If the time was changed at any point, I was not informed of it or discussed the change. Wow, MercyHealth sucks at communicating with the patient in Janesville, Wisconsin. Unfortunately, yep. Ugh! No nurse or the director of the dialysis clinic has not talked to me about it. Sad! MercyHealth sucks at communicating with patients!! Dang staff! Yet, I do not want to leave the clinic and go elsewhere because the radiology department is real good with taking care of the dialysis catheter I have to use because my fistula never worked to be used, and my graft lasted only 9 months before it clotted and repairing it only for a few hours before stopping for good. Having 9 months free of a dialysis catheter was a fine treat and experience for me, but when the graft quit working properly, I willing went back to the catheter on the right side above my right breast. My veins are small and thin in. my arms that the cardiologist who works with dialysis patients can find a new access point in the arm, and I no longer have any veins to create another graft, I have my seventh catheter in place being used.
Am I upset that I do not have any veins left to have another graft for dialysis? No, I am not. I have been through a lot since I was born because my twin sister had died in my mom’s womb before she and I were born 2 months early. Her a biblical cord was not in the right place so she was not getting the nutrients she needed to survive. She was a stillborn and I came feet first instead of head first. I was only 3 lbs and 3 oz because of the fact I was a twin and born early. Because I was breach, I gulped in some cold air and needed to be revived and because of that, I have cerebral palsy at time of birth. CP has affected my right side of my body and I have met many kids with cerebral palsy through the years with different forms of CP. While I grew up in the world with other disabled or handicapped children and adults since I was a child, I also knew people who do not have noticeable disabilities and handicaps. Even though I have always had health issues as a child and adult, I have considered myself a normal human being because I have non-handicapped friends, too. So, being sickly as a youngster and adult, I have struggled in areas of my life to live a normal life as a handicapped person. My disability has changed in 2022 because of a hematoma in 2022 has impaired my ability to walk a real good with a walker, I can get in and out of bed with assistance and help and transfer to and from furniture and to the bathroom and back. I use a power chair to get around while going to appointments and fun things with my caregivers. The walking is slow, but I have come a long way from having to learn how to walk again after the hematoma left and through physical therapy. To be very honest, I hate physical therapy, but will have it once in a while to get strong again, but I have.a stubborn streak that my Grandpa Clarence Fox passed onto me and I have the temper of a Karnopp male relative like my dad and uncles who grew up farming until a few years ago. My dad and Uncle Butch (Larry) are the only siblings alive now because Uncle Ed passed away in 1997, my Aunt Dorothy passed away a few years ago, and my Uncle Ray passed away last month in March at the age of 90.
Well, I have 6 minutes left now.