Dialysis didn’t cause any problems during treatment even though the machine alarm kept going off every few minutes. My catheter was being a little finicky, but I got through therapy at 12:30 PM. A nurse put Cathflo in my catheter after treatment to break up the clotting (if any) to allow treatment to be successful. I had to recline, sit still, and be quiet.
Dialysis went smoothly, and I got hooked up before 9 AM and out the door shortly after 12 PM. On a rare occasion, I get hooked up before 9:15 AM. The center seemed abuzz of patients, technicians, and nurses today.
There is always something happening in the three pods, but today the day seemed smooth sailing for everyone.
I found Thursday to be a good day.
Now I need to do better with my fluid intake. I have been three to five kilos over my goal weight this week. That is a little disappointing, but I know I can do it. I have to do better. Yes, the summer months are warmer, and I get thirsty for more water. I can do this.
Today was a perfect dialysis day for me. I am still four kilos over my goal weight.
Yes, I am disappointed. With this being my last treatment for the week, I am determined to drink the allowed fluid of thirty-four ounces. I have to be very serious from this day forward. Maybe Gatorade will help me.
There is a technician I like. She is such a sweetheart. She is twenty-two years old, and she had trained for three months before she got the go-ahead to work with patients. She does a fantastic job. I do not mind being her guinea pig, LOL
Tuesday, 7/21 Dialysis started roughly when the nurse had to put in Cathflo to get rid of the clot in my catheter. I didn’t begin dialyzing until 10 AM, but I still left at 1 PM. With Cathflo administered, it took care of the clotting, and the dialysis went well for the three hours I had dialyzed.
Thursday, 7/23 We had no problems today. I have been working very hard at taking in my fluid amount of thirty-four ounces a day, and it is more difficult when the weather is hot, muggy, and over eighty-eight degrees. I have managed the best I can, and I have had 2.7 kilos taken out today. I did not make it to 3.2 kilos as planned because I was beginning to feel cramped and dizzy. We will have to wait and see what Saturday brings.
Saturday. 7/25 The final treatment of the week is always Saturday. I was able to get through treatment without alarms. My lines were reversed but got through dialysis. While at dialysis, I attended church on Zoom with Pastor S and other church members. It was a good day.
I have a dialysis update for the week of July 13 – July 18, 2020. I was planning on posting an entry earlier while at dialysis, but the internet was down at the clinic today, Saturday. I couldn’t even get online to have Sabbath school and worship. Dialysis went smoothly all week long. I am glad to be home relaxing, listening to Kids Praise Too! on 3ABN. I missed the first half of New Perceptions on 3ABN but got the topic’s gist when I got home. Despite not being able to be online while at dialysis can be a downer, but I do what I can.
Today I was not in chair four. I was in chair two while JA was in chair one. E (male) was in chair four, and E (female) was in chair three. It was a nice change for treatment. Treatment today went smoothly, but before it went smoothly, we ran in a couple of snags with the machine reacting to my catheter. I don’t think it was my catheter or me. The nurse T (female) was having difficulty with my computer/machine and vowed not to touch it again during my treatment. I did not find that amusing. With treatment going smoothly today, I can now express how the procedure/treatment went on Tuesday and Thursday. Please forgive me for talking about today first. It was fresh on my mind, and I have time to explain.
Lately, my blood pressure has been going below 100/60. Today my BP went to 96/45. I get the feeling of being taken into another dimension. I was feeling like I was riding the waves of an ocean or sea. Technicians attended to my needs to get some fluid back into my system to put the BP above 100/60 again. I was then unhooked from the machine, got a weight before walking out of the clinic door, and left for the day.
I am glad to be halfway through my weekly treatment at the dialysis center. My BP didn’t cause much of a problem today. My BP went low once, and they had to take care of low blood pressure again as they did on Tuesday. I plan to see Saturday be better.
For today, Saturday, July 11, 2020, dialysis came and went like clockwork. We had a couple of bumps in the road today, but dialysis worked for the most part. Out 3.2 kg of fluid being taken 3.14 kg of fluid out of me. When the machine alarmed one time, it took a technician to restart the device again to dialyze me after five minutes. Unacceptable! I talked to LV, the nurse, about it. I witnessed technicians around one patient when one of them could have come over to my machine to restart. LV, the nurse agreed with me that waiting five minutes is not acceptable, and it will not happen again. Technicians should pay attention to their patients in their pod. I was not a happy patient. The five minutes cost my fluid outtake, which was turned out to be .06 kg short. Lisa said she would make that point clear to the technicians at a meeting.
I do have to admit that I am glad to have my weekend now. I don’t have treatment again until Tuesday. Now that summer is here and the weather will get hot, keeping my fluid intake at thirty-four ounces a day will be a little difficult. Anything over thirty-four ounces will be fluid intension in my body.
I am so looking forward to my dialysis weekend. It has been one of those weeks where dialysis went smoothly on Tuesday and Thursday. I am hoping it goes smoothly today as well. Dialysis ran Tuesday and Thursday perfectly. The lines were NOT reversed. Because Saturday, July 4, 2020, dialysis was not working at all, I had to go to dialysis on Monday, July 6, 2020, for my three hours and fifteen-minute treatment, and Dr. A wanted me to come in on Tuesday for two hours and forty-five minute of therapy to keep me on track. This week I had four treatments. It was worth it, and today, I am going during my regular treatment time, and it is for the best. I did have a lot of fluid in me this week because I missed a day of treatment last Saturday.
I have learned to relax and allow the catheter to do its job this week. I hope it does the same today. I will update Saturday later in the day when I get home to rest a bit.
I admit that I have not been keeping up with my dialysis updates like I first started. Why not wait until the week of treatment is over to give an update. I haven’t failed to talk about last week; I didn’t do it yet. Why not right now? Last week June 23, 25, and 27 went smoothly. Tuesday, June 30, dialysis was a little rough in starting. I had to have Cathflo put in for forty-five minutes before being hooked up to the dialyzer. Thursday, July 2, dialysis went very smoothly without a hitch. I am hoping Saturday goes well.
Like I said before, I have decided to write my dialysis updates at the end of my weekly treatment sessions. In the meantime, please be patient with me. Today I have learned that taking 3.5 kg of fluid may not be feasible any longer. Today, I got dizzy when my blood pressure went below 100/60 for a little while — the last ten minutes of treatment (removal) at 3.2 kg of toxins and fluid. I got home safely with DKF’s help before she left for the weekend. Now I can concentrate on recuperating, Bible study, and decide on what I am going to do for the rest of my weekend. Dialysis did go well all week. The only thing that happened twice this week is my blood pressure went low enough that I had gotten dizzy two different days — Thursdsy and Saturday — today.
I I have come to share how dialysis is going. I’ve also changed when I share because not always am I able to get online after treatment. Why not share about my week of dialysis on Saturday instead of every Tuesday, Thursday, and Saturday? It seems more logical to me. I have twenty-three minutes left to dialyze today, and it’s going smoothly today. My BP is low at 102/50 at the moment. Have to keep an eye on it. As for dialysis all week, it has gone smoothly. My BP was low on Thursday, so they could only take out 2.6 kilograms of fluid. When I get dizzy, they will always put me on minimum — clean my blood only. I am at a minimum right now at 12:36 PM. More details later.
I have not updated my life on dialysis for the past two weeks. Please forgive me for not keeping up. I came up with an idea to make this dialysis update the one that covers the days I missed. The past two weeks of dialysis went smoothly, and I got out of the clinic by 1 PM each day. Today, I got out by 12:30 PM. My catheter has been holding up nicely at eleven months old. I find this fantastic because catheters wear out eventually. Clinics are beginning to reopen from the Coronavirus pandemic, so when time is set for me to have a mapping done for a fistula or graft, that appointment will be made. The team that works with me depends on who is in all three pods. All the techs and nurses are very good at what they do. The clinic has traveling techs (3), and the rest of the techs and nurses are permanent. Although we shouldn’t have favorites, I do have my favorites. I still have a fear of strangers until I get to know them as they come and go. CC, K, and A, from other states, love to continue their traveling and not stay in one spot too long like To, Tr, and T, and R for a year before leaving. I do not know if T will be back even though I have heard she does want to return after the threat of the Coronavirus has cooled down. The virus has yet to calm down in Rock County. I am still playing it safe even though I get looks from neighbors. Dialysis patients are having their temperatures checked before entering the clinic, and are to wear masks out in public until further notice.
The week before, my two-week hiatus of keeping up with my life on dialysis, I did have a week of dialysis that didn’t go smoothly. Cathflo had to be used because my catheter was NOT working correctly. During that week, I could tell that dialysis didn’t help me. The center has days where patients have issues with their treatment. Although dialysis treatment is best when using a fistula or graft, some patients like me, use a catheter for treatment. Fistulas and grafts are, sometimes, tricky, whereas the catheter can be more tricky. I am grateful that my catheter is working smoothly at this time, even with an occasional hiccup or two from time to time. The past two weeks have proven to be excellent dialysis days also though my blood pressure was low three different times during the past two weeks. What the techs and nurses do, when blood pressures read low, they put the machine on the minimum that allows your blood pressure to come back up as my blood continues to get cleaned of toxins, and the taking of fluid is at a standstill.
Today was a good, excellent dialysis day. What happened afterward is something I have to mention in my diary. I am glad that tomorrow is Sunday, and DKF is not here until Monday morning. I need a break from people. I am taking advantage of my day once Sunday arrives.
I was not happy how dialysis went yesterday. I believe the nurses and technicians working on my behalf did not like how dialysis went for me. Because I could not dialyze properly, I have had discomfort the rest of Tuesday and most of the day today. I had mentioned that I had a dizzy spell that lasted almost fifteen minutes, and I had two dizzy spells yesterday. I was alone from 1:45 PM to 7 AM until DKF arrived to take care of me until 10:30 AM. I had to do a lot for myself while feeling dialysis didn’t do its job the best I could.