Dialysis Update (Two Weeks)

Week of August 9 – 15, 2020

Tuesday

Today was not too bad. The technicians and nurses took good care of me. Dialysis went smoothly. I feel tired and out of sorts this afternoon after dialysis because the amount of fluid they have taken out of me has lowered my blood pressure below 100/75. The machine had to be changed to cleaning the blood and not taking more fluid out of me because I got dizzy and cramped in my leg and arms.

Thursday

Blood pressure was low again. The machine reprogrammed to clean blood only. 

Dialysis did go smoothly. Dizziness occurred again, and movement to my ride home was slower than usual. Breathing is difficult while wearing my mask, but I am still moving. 

I believe today is the first day in a long time I have felt that.

Saturday

My hope that dialysis would be better than Thursday was dashed, and I still had issues with my blood pressure going below 100/75 during treatment. I will talk to Dr. A about readjusting my fluid output. I was more weak than usual. It has been a year since I have had to use a wheelchair to exit the building and ride home. Yes, I had to have a wheelchair today. My breathing with my mask on was difficult. My legs didn’t want to move my way; they wanted to go their way, making my breathing difficult. Something about my treatment has to be changed next week.

Week of August 16 – 22, 2020

Tuesday

Every Monday and Tuesday, unless it is a month with five Mondays and Tuesdays, Dr. A and Dr. S come to the clinic on rounds with patients to discuss their plans for each one. The only thing about privacy is that there isn’t any at the clinic. Dr. A and I did speak about my blood pressure, the amount of fluid removed from my body during treatment, and my phosphorus level still being high, and what we are going to do about it. Dr. A changed my goal weight to 91 kgs, readjusted the calcium acetate medication that controls my phosphorous level, and went smoothly. I had 2.8 kilos of fluid taken out. What I experienced Saturday will not be experienced again for a long time. I was able to leave the clinic slowly but able to walk out with my walker. I am tired, and the weather is warm, but I am managing. Today DKF and I have errands to run, and I am going to walk more than I have in a long time. I have to do this. It has to be done. I can do this!!

Thursday

Another good day for dialysis. I got in and out in record time. The new goal weight has helped me feel stronger and having less weakness and tiredness.

Saturday

A very good dialysis day and the weekend has arrived. I got in, and out while DKF is in the hospital taking care of her health, her husband SF took me to dialysis and picked me up today. I feel a little flustered about some other things that do not have anything to do with dialysis. My flustered state did not affect my catheter today, but it will affect my catheter if I do not get it out of my system. I think it will be okay.